Milo is one week old today! It seems like it has been the fastest week and the slowest week at the same time. He has had a pretty good day again! He has been a little irritable today, mostly because he is getting accustomed to the sedative, and so he can react to more stimuli. So any loud noise, bright light, or procedure makes him pretty upset. It is so sad to see him cry! It is a silent cry because of the tube down his throat, but it is so hard not to pick him up and comfort him. We can hold his hands and feet and try to soothe him, and it usually works. It's just hard for all of us.
But more about the good day! He has been weaned throughout the day on his medication for the high blood pressure to his lungs, and has been reacting very well. He may be completely off of the medication tomorrow. His oxygen levels are nearly at room air still. He is still on the oscillating ventilator, but he may be able to be moved to a conventional ventilator in the next couple of days. He had an echocardiogram, and things are still looking good. The doctors are very pleased with his progress, especially with his lungs. They are hoping to do the heart surgery as soon as his lungs are ready, and are still saying this Friday or next Tuesday. We are happy that he will have the surgery soon, but a little terrified too since it is such a big surgery on such a little guy.
We were able to visit first thing this morning when the doctors were doing their rounds. We got to listen to the doctors all discuss him and make the plan for the day. It was the first time being there for rounds, and we are hoping to get there for them more often. Grandma and Grandpa Dewey visited Milo again too for a bit this afternoon. We spent the afternoon napping (Amber is recovering well from her c-section, but is still exhausted) and taking Vivienne to run some errands. It was nice to have an afternoon with just the three of us.
So, hopefully tomorrow will go as well and we will be able to report that he is off of more medication and maybe even off of the current ventilator!
Thank you for the daily updates! We are so happy to hear that Milo is doing so well.
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