One step closer

Milo had a fairly good day.  All of his medicine levels are about the same, except they are weaning him from a medicine that has been helping with his blood pressure to his lungs.  That means that he's starting to do well enough to manage his own blood pressure.  We are very happy about this!  They will continue weaning the next few days and see how he does.  It's one step closer to getting him off of the ventilator.  They are still talking about doing the surgery either on Friday or, more likely, next week.

The best part of the day was when I (Amber) got to change Milo's diaper.  I know that we parents take that for granted, and maybe even grumble about changing diapers sometimes, but it was such a special moment today.  It was the most interaction I've had with Milo in days.  I also got to wipe his face with gauze and water to clean him.  Again, another very special moment for me.  He was moving around a bit more today, and just looked a little healthier.  Every day I feed him a drop of milk on a Q-tip, and today he actually responded and sucked on the Q-tip for a second.  This all made it a wonderful Mother's Day for me.

We also got to spend some time with Vivienne today, and she was happy to have us around.  She has been such a brave girl with having us away so much visiting Milo.  We have been trying to go while she is napping so that we can spend as much time with her as we can.  She has a good time with Grandma and Grandpa, but I know that she is confused by all of this.  She will be so much happier when Milo is home, and things get to a new normal.